Today science and medicine have the mechanisms via medical drugs,
machines such as ventilators or respirators, and other medical resources to
prolong life in the context of artificial extraordinary means until there is
nothing else to introduce into the body and the patient dies. This case vividly
demonstrates this use of extraordinary means and optimistic thought to sustain
the life of M.W. Although M.W.’s condition improved at times it seems that it did
not improve long enough to begin discharge planning to home. M.W.’s situation
was very tentative which put the health care professionals in charge of M.W.’s
care in an huge ethical quandary. The parents seem to have become emotionally
and visibly absent in their hospital visits after a long period of experiencing
the ups and downs of M.W.’s life. They also believed that God was in charge and
hence, were reluctant to request the discontinuance of any medical means of
sustaining M.W.’s life.
Nonetheless, the case gradually involves into one of pediatric medical
futility or non-beneficial medical care. It is a profound pediatric ethical
issue that needed immediate attention. For all concerned, including the
parents, arguably, the meaning of “allowing one to die” or passive euthanasia
needed to be discussed and discerned that would hopefully result in a good plan
of action. Furthermore, theological
ethical principles such as human dignity, stewardship, and participation needed
to be part of the ethical decision-making process.
For M.W. it must be made clear that the intent is not to directly kill
this newborn infant, as in mercy killing or active euthanasia, but to allow
M.W. to experience death with dignity by moving into palliative care and then
hospice care setting. Clearly, the ongoing and seemingly non-beneficial medical
treatment offered to M.W. affronted M.W.’s human dignity. M.W. appeared to have
suffered profoundly through health care professionals’ continual medical
interventions. Created in the image and likeness of God, M.W.’s inherent human
dignity is of incomparable worth, which needed more focused attention in this
case.
In terms of the principles of stewardship, it is important to note
first and foremost that human life is incalculable and a price tag can never be
attached to it. However, because health care goods are extremely expensive and too
many times scarce, it is also vital that this principle be employed in the
theological ethical analysis of this case. Indeed the health care providers
witnessed periods of improvements with M.W., but overall M.W.’s condition
seemed to be dire. The goods of health care should have been administered more
wisely and in a discerning way. These goods are never to be employed so
perpetually to prolong life, especially if medical signs demonstrate that the
seemingly enduring treatment is non-beneficial, and especially if medical signs
conveyed that more harm is being done over the ability for M.W. to thrive and
to flourish.
The principle of participation is also key to this case, especially in
finding creative, subtle, and/or overt ways to invite M.W.’s parents to
participate in the discussion, discernment, and plan of action for M.W.’s
medical care. It is unfair for parents who gradually have become visibly and/or
emotionally absent from their infant’s care to push from a distance for everything
to sustain life. The infant was in the dying process. Furthermore, one needed to discuss with the
parents their understanding of “what does it mean to do everything,” in tandem
with a dialogue that is very informative and educational about pediatric
futility, dying, and death as it relates to M.W. Along with the hospital’s ethics committee,
perhaps someone from pastoral care and social services needed to be present to engage
with the parents and health care providers about this case.
In essence, I argue that the case of pediatric futility should have
been handled differently so as not to continue non-beneficial treatment for
M.W. I believe that a theological ethical analysis on this case would have
allowed for deeper reflection, analysis, and dialogue concerning: 1.) M.W.’s
human dignity, 2) the meaning of stewardship with respect to the use of scarce
health care goods, and 3) the principle of participation where the parents should
have had more opportunities to discuss what it means to “do everything” in
light of the dire state and end of life condition of M.W. Furthermore
distinguishing between what it means to directly kill someone as oppose to
allowing one to die needed to be discussed with the parents.