Although the case of M.W. presents difficult ethical and
medical questions, the legal issue is fairly straightforward. Simply put: Do the physicians have a legal
duty to provide life-sustaining medical treatment (“LSMT”) they consider
medically inappropriate due to medical futility? In the case of M.W., the answer likely is
“no,” but depends in part on relevant state law.
In general, physicians have no legal obligation to provide
treatment they find medically inappropriate.
For example, there is no question that “a physician would not be
obligated to honor a patient’s request for magnetic resonance imaging (“MRI”)
for complaints of a bump on their head.”[i] As one commentator has explained, “[e]ven
civil malpractice standards do not require a physician to render useless
interventions.”1 Rather,
civil malpractice standards require that physicians use reasonable medical
judgment, in accordance with the standard of care, when prescribing treatment
or otherwise caring for a patient. It is
not within the standard of care to prescribe treatment that physicians know or
reasonably believe will not be beneficial.
Accordingly, physicians do not have a legal obligation to provide
medically futile treatment. In this
case, it is clear that M.W.’s physicians considered the parents’ request for
LSMT for M.W. medically inappropriate and futile and they told the parents as
much.
Because the physicians already were providing the treatment
they now thought was futile, however, the physicians found themselves in the position
of having to take affirmative actions to “deny” continuing or providing
additional treatment. Generally, doing
something to a patient, such as removing a feeding tube, requires the patient’s
(or a surrogate’s) consent. Here, the
physicians did not have the consent of M.W.’s parents to stop treatment. As a result, when M.W.’s parents refused to
consent to LSMT being withdrawn from M.W., the physicians took steps to resolve
the impasse by requesting a consultation from the hospital’s ethics committee. Unfortunately (for all involved), the ethics
committee gave an equivocal answer, which was then misinterpreted by the
physicians. The ethics committee advised
that the physicians defer to the parents’ wishes “unless there is consensus among the caregivers that treatment is both
futile and causing a burden of pain and suffering.”
Based on the facts, there was consensus among the caregivers
that the treatment was futile and likely was causing M.W. pain and
suffering. Therefore, the ethics
committee decision implicitly supported the physicians’ position, or, at the
very least, did not definitively defer to the parents’ wishes. This lack of clarity from the ethics
committee, along with likely uncertainty about the legal support for
withdrawing LSMT against a patient’s (or surrogate’s) wishes,[ii]
caused the physicians to continue treatment they thought was medically
inappropriate.
Had the physicians sought advice of legal counsel, they may
have garnered sufficient comfort regarding their potential liability such that
they would have followed their clinical instincts and withdrawn the LSMT in
spite of the parents’ wishes. Medical
futility cases have been presented in the context of litigation both prior to
LSMT being withdrawn and after.
Providers have been increasingly successful in the courts in both
situations. 2, [iii] In post-withdrawal cases, patient surrogates
often are unable to “establish that the standard of care requires continued
LSMT” and/or “establish causation and damages,” and judgments against
physicians tend to occur “only where the provider’s conduct is outrageous,
[such as] when LSMT is withdrawn in an egregiously insensitive manner.” 2 Thus the physicians in this case could have
chosen to withdraw the LSMT from M.W. (with or without clarification from the
ethics committee) and taken their chances in the inevitable lawsuit from M.W.’s
parents. Most physicians, however, would
prefer to know prior to the withdrawal of LSMT that their actions will not give
rise to liability. Therefore, physicians
(or the institutions where they practice) might seek declaratory relief (a
binding adjudication that establishes the rights of the parties).[iv] While this solution may seem the most
practical, some well-known yet dated and often distinguishable decisions have
given the false impression that courts will not permit physicians to withdraw
LSMT over a patient’s (or surrogate’s) wishes, and many are reluctant to even
ask a court for permission to do so.
One such case is the Baby
K case,[v]
which is distinguishable from the case of M.W. in that it involved a baby who
presented to the hospital’s emergency department in an “emergency medical
condition.” Under federal law, the
Emergency Medical Treatment and Active Labor Act (EMTALA), the hospital was
obligated to stabilize Baby K’s condition.
In the case at hand, M.W. was an inpatient and did not present to the
hospital’s emergency department in an emergency condition. Accordingly, EMTALA is not applicable and
continued LSMT for M.W. would not be required under the statute.
In more and more states, physicians are able to get
comfortable that they can withdraw LSMT over a parent’s objection without
having to go to court for a decision on their specific case. In fact, most states have now enacted statutes
expressly permitting health care providers to refuse and possibly override a
patient’s request for LSMT. The Texas
Advance Directives Act (TADA), which is consistent with the American Medical
Association’s recommendations regarding resolution of disputes about medical
futility,[vi]
is the most often cited example of such a statute. Notably, following TADA’s procedure for
resolving disputes between physicians and patients, affords physicians immunity
from civil and criminal prosecution. The
procedure is as follows:
● the physicians must obtain review of the case
by the institution’s ethics committee and the physicians involved in the
patient’s care cannot be involved in the ethics committee’s decision
●
the physicians must provide treatment
during this review
●
if the ethics committee agrees with the
physicians, then the physicians must continue treatment for ten days following
the decision, during which time the patient may seek to have his/her care
transferred to another physician; though a patient (or surrogate) can ask a
court to extend the ten day period and the court may grant such request if “there is a reasonable expectation that a physician or
health care facility that will honor the patient’s [wishes] will be found”[vii]
● if the patient
(or surrogate) cannot find another physician willing to provide the LSMT he/she
desires during the ten day (or extended) time period, the physicians may
withdraw treatment without fear of liability.
Had the M.W. case occurred in Texas (or another state with a
law like TADA), the physicians could have withdrawn LSMT from M.W. without fear
of liability if it followed the prescribed process. However, the physicians would have been
required to ask the ethics committee to provide a clear, unequivocal decision
regarding the propriety of continuing LSMT.
If the M.W. case occurred in another state, the physicians also may have
been able to rely on a state statute for the authority to withdraw treatment
over M.W.’s parent’s wishes.[viii] If the case occurred in a state without an
applicable statute, or in a state with an ambiguous applicable statute, the
physicians would be wise to seek a declaratory judgment from a court that it
could withdraw LSMT from M.W.[ix]
[i] George
P. Smith, Futility and the Principle of
Medical Futility: Safeguarding Autonomy and the Prohibition Against Cruel and
Unusual Punishment, 12 J. Contemp.
Health Law & Policy 1 (1995).
[ii]
Thaddeus M. Pope, Involuntary Passive
Euthanasia in U.S. Courts: Reassessing the Judicial Treatment of Medical
Futility Cases, 9 Marq. Elder’s
Advisor 229 (2008) (reviewing/collecting cases).
[iii] To be
clear, though, there are not a significant number of decisions precisely on
point. Rather, many cases brought are
resolved by the parties out of court, are decided on other grounds, or are rendered
moot by either the patient dying or the patient finding another physician
willing to provide the treatment at issue and the physicians properly
transferring care to such physician. In
fact, one of the first published cases involving a dispute to withdraw LSMT
from an infant over the parent’s wishes was rendered moot before the court
could rule on the issue because the parents found another physician willing to
provide the controversial care. See John J. Paris et al., Physician’s Refusal of Requested Treatment:
The Case of Baby L, 322 New Eng. J.
Med. 1012 (1990).
[iv] Another
option for prior to withdrawing treatment is for the physicians to seek removal
and replacement of the patient surrogate on the grounds that he or she is unfit
to serve as the surrogate. The argument generally presented is that the
surrogate does not understand that the treatment is no longer in the patient’s
best interests and is contrary to standard medical practice. The court in In re Wanglie held, however, that a surrogate’s disagreement with
the physician’s recommended course of action (withdrawal of treatment) is not
sufficient grounds for replacement of the surrogate. In re
Wanglie, No. PX-91-283 (Minn. Prob. Ct. Hennepin County June 28, 1991), reprinted in 7 Issues Law & Med. 369, 370-72 (1991). Absent some other reason to question the
fitness of a surrogate, an action to remove a surrogate is unlikely to
succeed.
[v] In re Baby K, 16 F.3d 349 (4th Cir.
1996).
[vi] Mary S.
McCabe and Courtney Storm, When Doctors
and Patients Disagree About Medical Futility, 4 J. Oncology Practice 207, 208-09 (2008).
[vii] See Tex HS
Code Ann. § 166.046
[viii] See, e.g., N.M. Stat. §§ 24-7A-1 to 18
(2000); Me. Rev. Stat. Ann. tit. 18-A, §§ 5-801 to 817 (1995); Del. Code Ann.
tit. 16, §§ 2501-2518 (2003); Cal. Prob. Code §§ 4600-4806 (West Supp. 2007).
[ix] It also
is important to note that minor factual differences in the case could have
implicated EMTALA, as in the Baby K
case, or other federal statutes, such as the “Baby Doe” regulations. 50 Federal
Register 14879-14892 (1985) (amending
the U.S. Child Abuse Prevention and Treatment Act (CAPTA), Pub. L. No. 42
U.S.C. 5101 et seq.). Although not relevant to the M.W. case, these
statutes should be considered.